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Vol. 6 Number 2                                                                                                                          June  2002

Hershey Hearts is committed to supporting, helping and educating families of children with congenital heart disease.  This is achieved through meetings, newsletters and a visitation program. Our aim is to strengthen families during their long journey from despair to hope.

A Letter from the President
By Rich Reinsburrow
It is time for the annual Hershey Hearts picnic again and that means that it is time for elections of officers. As stated in the Hershey Hearts By-laws, in even number years the term of the President, Secretary, and one member-At-Large are up and in the odd number years the position of Vice-President, Treasurer , and the other Member-At-Large are up. Therefore, at this year's picnic we will be holding elections for the President, Secretary, and one Member-At-Large. The Hershey Hearts By-laws also state, "Each member of the Board of Directors may hold office for only two consecutive two-year terms, but may be reelected for additional terms after a hiatus of at least one year." Therefore, this will be my last message as your president. I have enjoyed the past several years as your president helping to develop our group into what it has become.

As I bid farewell as your president I am reminded why I became your first president. In 1992, when my daughter was born with a congenital heart defect, I wanted someone to talk to about her future. I wanted some comfort in knowing that there was hope beyond the crisis I was going through. In 1992, the only comfort that was available at Hershey Medical Center was that of the doctors, nurses, and support staff. There were no parents, no lists, and no Internet chat rooms available to answer my questions or offer comfort. It was years later when I was asked to be the first president of this newly forming group and I answered yes. As the years pass, individuals will come and go from the various leadership positions of Hershey Hearts. There will be disagreement, miscommunication, disappointment, frustration, and mistakes between board members, but the ultimate goal of Hershey Hearts is that we are, "committed to supporting, helping, and educating families of children with heart disease... Our aim is to strengthen families during their long journey from despair to hope." 

My final message to each of you is, volunteer. If you do not get a reply, be persistent. If you are asked, make your answer YES!


Hershey Hearts Picnic
By Paul Sipe
The 6th annual Hershey Hearts Picnic will be held on Saturday, July 20th from 11:00 a.m. until 4:00 p.m. The picnic will be at Hoffer Part in Middletown. Please use the directions included. Please bring a covered dish and/or a dessert. Hamburgers, hot dogs, silverware, plates, napkins, cups, and drinks will be provided. We will eat at 12:00 noon.

Activities will include clowns and a magic show at 1:00 p.m. We will also be giving away a "Special Mystery" door prize. A brief meeting will take place after the magic show.

The picnic shelter is enclosed, therefore the picnic will be held rain or shine. The picnic shelter is handicap accessible (Handicap parking at the shelter with macadam walkway up to the shelter.) Everyone is welcome! Please come and join in on the fun and fellowship.

WE HOPE TO SEE YOU THERE !!!


Directions to the Hershey Hearts Picnic
Saturday July 20, 2002, 11am to 4pm.
Hoffer Park in Middletown, PA

From Hershey Medical Center
Take 322 West toward Harrisburg to the "Middletown/Hummelstown" Exit. At the stop sign off the exit, turn left toward Middletown. At the first traffic light, turn right, follow signs toward Middletown .At the next traffic light, turn left onto Middletown Road. Follow Middletown Road for about 5 miles into Middletown Boro.

From Harrisburg
Take 322 East toward Hershey to the "Hummelstown/Middletown" Exit. At the traffic light off the exit, turn right onto Middletown Road. Follow Middletown Road for about 5 miles into Middletown. Use the *****Inside Middletown Boro***** directions
From Lancaster
Take 283 West to the "Middletown/Hummelstown" Exit. At the stop sign off the exit, turn left toward Middletown. Follow Middletown Road for about 1 mile into Middletown Boro. 
Use the *****Inside Middletown Boro***** directions
From York
Take 83 North to the PA Turnpike East (76) toward Philadelphia. Continue on the Turnpike to Exit 19 - Harrisburg East. Take 283 East - Exit 2E toward Lancaster. Get off at the "Middletown/Hummelstown" Exit. Bare right off the exit, follow signs toward Middletown. Follow Middletown Road for about 1 mile into Middletown Boro. Use the *****Inside Middletown Boro***** directions

 

****Inside Middletown Boro*****
Middletown Road becomes Vine Street inside Middletown Boro. Follow Vine Street until the traffic light (about 1.5 miles). At the traffic light, turn right onto Main street (Route 230). Turn left at the next street "North Race Street". (J&J Pizza Family Restaurant is on the south/west corner) Follow North Race Street until the fifth stop sign. Turn left at the fifth stop sign into Hoffer Park.


Creative Memories Fundraiser
By Bonnie Stauffer
Scrapbooking! It's that time of year again! The 2nd annual Creative Memories Fundraiser will take place at Hershey Medical Center on September 14th from 9am - 5pm. Last year, we all had a great time working on our album projects ALL day long and also got acquainted with other Hershey Hearts families!

Are you NEW to Creative memories? There will be time for me to sit with you and start your album projects. Just let me know in advance if you have an interest in beginning that day!

Are you an avid scrapbooker? There will be breakout sessions throughout the day to highlight new products and even specific projects related to your "Hershey Hearts" baby! I have a sample "Medical ABC/123 Album" for Desirae, my daughter, to learn about her previous three surgeries. She loves it!

Bring your family and friends! Spend time together! Bring lots of photos! Win door prizes galore! Registration will be $10 and lunch will be provided. Registration will start at the Hershey Hearts picnic but call me with any questions.

Thank you and I look forward to seeing you all there! Bonnie 
Stauffer, CM unit leader.


Heart Beat Raffle
By Jill Hester and Rich Reinsburrow
The Fourth annual Heart Beat Auction/Raffle will be held Monday, July 15th through Friday, July 19th in Room H-1260 at the Hershey Medical Center, which is located in the main corridor from the main entrance to the cafeteria. We are trying something different this year by only raffling off one large prize. You will purchase chances to win either a Kawasaki 4-wheeler or a Sea-Doo watercraft. Please note that the auction is being held separately from the picnic (which is July 20) again this year. The drawing for the winner will be held following the Hershey Hearts' picnic. The winner will be notified on Monday, July 22, 2002.


Treasurer's Report
By Jill Hester
In the February newsletter, it was reported that the total balance in both our savings and checking accounts as of December 31, 2001 was $14,714.00. During the past five months (January through May 2002) our receipts totaled $7,170.56, which consisted of $614.80 that was designated for the "For Hearts" Fund, $594.78 in various cash donations, and $5,827.70 from the Basket Bingo that was held in Red Lion at the end of April. The savings account earned $133.28 in interest.

Disbursements totaled $4,634.12 from January to May. They included $634.80 to the "For Hearts" Fund, $897.39 in Basket Bingo expenses, $125.00 for a raffle license, $679.61 for the February newsletter printing and mailing, $212.18 (for babysitting and refreshments) for the March general membership meeting, a $500.00 donation to Woody Woolfe (Heart to Hand Ministries), $175.00 for the HH Fluted Wine Glasses that were sold, $253.75 for CHD Awareness Day on February 14, 2002, $201.47 for the Family Meal Program, $755.64 in Survival Kit costs, and $199.28 in miscellaneous supplies and expenses.

The total balance in both our savings and checking accounts as of May 31, 2002 is $17,250.44.

As always, if anyone would like to make a donation or contact us for any reason, our mailing address is: 


Hershey Hearts
P.O. Box 163
Hershey, PA 17033-0163


Wish List
By Jill Hester
The Survival Kits that Hershey Hearts is providing to our families when their child is receiving treatment at Hershey Medical Center is an on-going project and continues to be well received and appreciated by the families. The canvas tote bags printed with the "heart in hand" design are filled with many items to help the families during which can be a very stressful, both emotionally and financially, time. They are an important way for Hershey Hearts to support and help families of children with heart disease. On average, Warren Smith, our pediatric cardiac social worker, distributes about 12 survival kits a month.

If you would like to donate any items (perhaps in honor of a birthday, special occasion, etc.) or can obtain donations for the Survival Kits, the following is our ""Wish List":

.  45 minute phone cards
.  Individually wrapped snacks
.  Mints or hard candy
.  Toothbrushes and toothpaste
.  Purse size packs of tissues
.  Travel or personal size toiletries

If you can donate any of these items, you may bring them to the Hershey Hearts Annual Picnic on July 20, 2002, or you may call the Hershey Hearts number at 1-800-864-2349 mailbox #3388.


Visitation Program
By April Weaver
The Visitation Program has been a successful outreach program of the Hershey Hearts Support Group. The volunteers who are members of this program are to be commended for their commitment to helping those who are beginning their pediatric cardiac journey at Hershey Medical Center.

As many of you know, Kelley and I have been co-chairs of the Visitation Program for several years. Because of changes in our personal lives, Kelley and I are looking for co-chairs to take over our duties. We are looking for people who are willing to commit themselves wholeheartedly so that the Visitation Program can continue to be dynamically-sound in order to accomplish our goal of helping those families who need us. We would like to have our replacements by September 2002. Duties would include creating Visitation schedules (currently done twice a year), updating the Visitation Program Volunteer mailing list, updating the telephone contact list, sending reminder cards, and fielding phone calls from new people interested in becoming a Visitation Volunteer. Kelley or I would be happy to discuss any part of the Visitation Committee Co-Chairs" duties with those of you who are interested in becoming a facilitator of this worthwhile program, Please contact Kelley Houtz or April Weaver.

Kelley and I extend our sincere thank-yous to all the current (and past) volunteers of the Visitation Program. You all have given your time unselfishly to help others with children who have been afflicted with some form of cardiac anomaly. Your efforts are greatly appreciated by all who have benefited from your visits at Hershey Medical Center.



3rd Annual Basket Bingo
By Terisa Johnson
Hershey Hears held it's 3rd annual Basket Bingo event on April 28th. We had another successful turn out. We had $1250.00 in Sponsors. We had a profit of $3837.06 after expenses. That's Great! Everyone had a fun time. All the baskets were filled and we also had 3 great raffles and a 50/50.

First, I would like to thank my dad, Bernell Kohler for calling bingo for this event. Other people I want to thank from the bottom of my heart and Hershey Hearts are: Gail Garrett, Dawn Snyder,  Chris Yohe, Paul Sipe, Mr. & Mrs. Jim Hester, Michelle Frey, Tammy Cassel, Mr. & Mrs. Bob Garvin, Jan Miller, Joelle Hevner, Jackie Kohr, Jill Repoley, Wendy Nafziger, Lisa McCoy and Husband, and let's not forget my husband, Eric. Let's just give great thanks to all these special people. Without these people & our great sponsors this wouldn't have been another great success.

Again, Thank you for another great event. Helping all the families and their children in going through some tough times like some of us had to . Also to make their stay a little more easier to handle. Take Care all of you and see you next year.



To Our Visitation Program Workers
By Warren Smith
I would like to send a very warm thanks to all those involved with visiting families here at the Children's Hospital and especially to Kellley Houtz and April Weaver, the Program Coordinators. It is quite impressive to see the change in the people after your time with them, It happens like clockwork; a mom or dad are naturally afraid of the risks of surgery and following a talk with you "veterans," a considerable amount of the load is lifted. At times it is actually visible in their faces.

So from Dr. Myers, Dr. Cyran, the nursing staff and all the cardiac team, we give a hearty WELL DONE!

However there is one note of concern I must mention. During the past several weeks, some of those who were scheduled to visit did not do so. Most have called to let me know that your were unable to visit, however some did not call and did not visit. Please know that I understand when the unexpected happens, it can change you plans and it is not possible to visit.

But when you do not call, we all lose.  The Visitation Program does not work without visitors; the Hershey Hearts group is viewed in an unfavorable light; and the saddest loss is by the families waiting to lean on and learn from your experience. 

So please check the old commitment tank. If your schedule is nearing maximum levels and 24 hours isn't enough in the day, by all means, ease up!! If this means you can no longer be part of the Visitation Program, we understand. We hope this isn't the case for you. Our program's strength is with you. Take time to consider your involvement to your benefit, as well as the families who so greatly appreciate what you have done.



Family Portraits

We are looking to feature Hershey Hearts Families in upcoming issues of the newsletter. If you would like to contribute please send your child's story including photographs to: 
Hershey Hearts, P.O. Box 163, Hershey, PA 17033-0163. Photographs will be returned.



Summer Safety Tips 
for Children with Heart Problems

By Mar Lou Box, RN, C, MSN
Summer is just around the corner, so just a few tips to make your summer safe and enjoyable.

Children with heart rhythm problems and pacemakers:
.  Avoid spinning amusement rides and rides that have sudden drop-off like the flume or roller
   coasters. These can aggravate the rhythm problem.
.  Children with pacemakers should avoid contact sports where the pacemaker site could be injured
   - Example: goalie in soccer, catcher in baseball, diving from high boards or "belly-flopping." Injury
   to the pacemaker site could cause fracture of the pacemaker leads. Also, rides that have safety
   belts that may press heavily over the pacer site and cause injury should be avoided.
.  Drink extra fluids during very warm weather to avoid dehydration and dizziness.

Children with unrepaired or partially repaired heart defects; children who still have "blue" episodes - Example: Hypoplastec Left Heart, Hemi-Fontan, Fontan, Shunts, 3 chambered hearts:
.  Drink plenty of water or fluids to avoid dehydration. The heart needs extra fluid to pump efficiently.
.  "Stay Cool" - avoid direct exposure to sun and severe heat. Wear hats, loose, light clothing; use
   fans or light air conditioning. Increased heat can make the heart work harder to try and cool the
   body.
.  Take frequent rest periods - avoid over-exerting.

Have a Safe and fun summer!!


Coming Events and Reminders

Mark your calendars for he following events in 2002:
.  Annual Hershey Heart picnic Saturday, July 20, 2002 at Hoffer Park in Middletown.
.  Hershey Hearts Raffle prizes to be displayed at Hershey Medical Center July 15-19, 2002.
.  Creative Memories Fundraiser Saturday, September 14, 2002, from 9:00 am - 5:00 pm at
   Hershey Medical Center.
.  Hershey Hearts Support Group Meeting Saturday, October 19, 2002, from 1:00-3:00 pm. at the
   Hershey Medical Center.
.  Board Meetings are held the third Monday of every month. 
.  If you know of a family that would like to receive this newsletter or would like to be removed from
   the mailing list, please call 1-800-864-2349, mailbox #3388.
.  If you are moving or have an address change, please call Hershey Hearts at 1-800-864-2349,
   mailbox #3388 to give the correct address.
.  If you have any questions, suggestions, or entries for the newsletter please call Hershey Hearts
   at 1-800-864-2349, mailbox #3388 and someone will return your call.


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