Meet Molli Faith
Molli Faith was born July 10, 2014. Prior to birth we found out at 19 weeks Molli was to be born with Hypoplastic Left Heart Syndrome ( HLHS) and Total Anomalous Pulmonary Venus Return (TAPVR ). Once born she also developed Coarctation of the Aorta ( COA). At 4 days old Molli underwent the Norwood procedure and TAPVR repair. She did fairly well during this time and way better then expected. Six weeks later we were discharged. Molli suffered from severe reflux and feeding ailments so we landed back in the hospital on and off for two weeks before staying inpatient. She was very sick at this time due to what we found out was Heart failure. She spent her days vomiting, even with a NJ feed, dusky blue and being well monitored. The doctors want to get her as old as possible for the next stage of surgery for HLHS, the Hemi Fotnan. But on September 27, 2014 she went into a respiratory distress and coded due to her failing heart. It was the worst night of our lives but Molli came back to us, he wasn’t ready to give up yet. Once she was stable we continued to get her stronger. A week later Molli had a Heart catherization to be sure she was ready for her Hemi Fotan to help relieve her heart from the extra work. Thankfully and by God’s grace she was, so on October 8, 2014 at ony 2 month and 2i days old, Molli Faith underwent her second open heart. This was a very rough surgery and recovery. Her heart was so tired and had a lot of rhythm issues and getting it to start back up. But once again, she pulled through. I’ll never forget all the machines in her room, ECMO was close because the doctors thought she would need it. Our little girl did it, and recovered. December 8, 2014 she had her Nissen/Gtube surgery due to her feeding issues, but is now 19 months old and awaiting her third open heart in March 2016.